Thursday, November 24, 2011

Top Ten Things I'm Thankful For


Today I am thankful for (in no particular order):
  1. Being "adopted" by my best friends family for Thanksgiving so my children and I don't spend the day alone (hubby and I split right after Thanksgiving last year so this year I don't have him & my step children here)
  2. The first time in 16 years I don't have to single-handedly cook a Thanksgiving feast
  3. Britney's Bipolar is stabilized
  4. My best friend is on the mend physically and emotionally following her double mastectomy and numerous complications and subsequent surgeries to 'fix' the problems encountered
  5. Haley's boyfriend of 2 years is finally making efforts to come over and get to know us
  6. The wonderful people I have encountered that truly understand where I'm coming from since I began this blog (you ladies know you are and I am so thankful for you!)
  7. Britney's stabilization has allowed us to get closer
  8. My new-found love of and talent for making homemade cards
  9. My friend letting me use her endless supply of crafting supplies to make homemade cards (it has been so therapeutic)
  10. My daughters!
I will get back on track with posting after the Thanksgiving holiday. I have spent a great deal of time helping my friend on her road to recovery following her mastectomy. It has been an honor for me to help her during her lowest point and I'm glad I was able to help.

More Bipolar posts coming up but first I have to stuff my face and then dig in the back of my closet for my "fat pants" to wear for a couple of weeks :)

HAPPY THANKSGIVING!
~Melissa

Thursday, November 17, 2011

1 in 12 Teens Self Harm



This article on a study that was just released caught my attention. My daughter self harms, as do many Bipolar and depressed teenagers. It is alarming to read that it is actually a strong predictor of  who will later commit suicide! Does your BP teen self harm?
_________________________________________________________________________________

One in 12 young people, mostly girls, engage in self-harming such as cutting, burning or taking life-threatening risks and around 10 percent of these continue to deliberately harm themselves into young adulthood, a study found Thursday.
Since self-harming is one of the strongest predictors of who will go on to commit suicide, the psychiatrists who conducted the study said they hoped its findings would help galvanize support for more active and earlier intervention for people at risk.
"The numbers we're talking about here are huge," said Keith Hawton of the Center for Suicide Research at Britain's Oxford University, who reviewed the findings at a briefing in London.
George Patton, who led the study at the Center for Adolescent Health at the Murdoch Children's Research Institute in Melbourne, Australia, said the findings revealed a "window of vulnerability" when young people were in their mid-teens and often struggling with emotional control.
"Self-harming represents a way of dealing with those emotions," he told the briefing.
In a report of their work in the Lancet medical journal, Patton's team also said young people who self-harm often have mental health problems that might not resolve without treatment.
"Because of the association between self-harm and suicide...the treatment of common mental disorders during adolescence could constitute an important...component of suicide prevention in young adults," they said.
Self-harm is a global health problem and is especially common among girls and women aged 15 to 24. Experts say they fear rates of self-abuse in this age group may be rising.
According to the World Health Organization, almost a million people die from suicide each year, giving a mortality rate of 16 per 100,000, or one death every 40 seconds. In the last 45 years, suicide rates have increased by 60 percent worldwide.
"MELTING POT"
In this study, Patton and Paul Moran of King's College London's Institute of Psychiatry followed a sample of young people in Victoria, Australia aged from around 15 to around 29 between 1992 and 2008.
A total of 1,802 people responded in the adolescent phase, and 149, or 8 percent, of them reported self-harm. More girls than boys said they self-harmed -- with rates of 10 percent and 6 percent respectively, translating to a 60 percent increased risk of self-harm in girls compared with boys.
Moran said a combination of hormonal changes during puberty, brain changes in the mid-teens with the final development of the pre-frontal cortex -- the brain area associated with planning, personality expression and moderating behavior -- and environmental factors such as peer pressure, emotional difficulties and family tensions appeared to be key factors.
"Hormonal changes are highly likely to be important in creating a sort of chemical melting pot which is very ripe for environmental factors to start working on -- particularly difficult family dynamics," he said.
Cutting and burning were the most common forms of self-harm for adolescents, with other methods such as poisoning, taking overdoses, and battery also featuring.
By the time the participants reached young adulthood, however, rates of self-harm dropped dramatically so that by age 29, less than 1 percent of participants reported deliberately doing something they knew would hurt or endanger themselves.
Marjorie Wallace, chief executive of the mental health charity SANE, said this reduction over time "should not seduce us into thinking that self-harm is just a phase that young people will grow out of."
"Sadly our own experience, echoed by many other studies, shows...an alarming increase in the numbers of those who self-harm and the severity of their injuries," she said.
The researchers said while it was reassuring that around 90 percent of teenagers who report self-harm are no longer doing it in adulthood, it was also important to recognize the high risks for the 10 percent who continue to do so as they grow up.
Hawton said previous studies had shown that self-harmers who come into hospital during their teenage and young adult years are 100 times more likely than the general population to commit suicide.

Tuesday, November 15, 2011

The Good, the Bad and the Mastectomy

I have good news and bad news.
  • Good News:
    • No more rages since Britney's brief, but volatile meltdown last week
    • She is pretty stable
My bad news is off topic but it is something - or someone, I should say - very important to me and my kids.

My best friend just had a double mastectomy and breast reconstruction surgery. She has had complication after complication and today the reconstruction failed and had to be removed in her third surgery of the past 3 days. She is understandably devastated. I ask that you please pray for her recovery and for her spirits to be lifted. Thank you.


Bipolar is still stabilized..halleluiah!!

Wishing you balance.
~Melissa

Wednesday, November 9, 2011

Mom the Punching Bag

Another night of being physically assaulted by my child. I don't know how much more I can handle. I feel like I'm living with an abusive spouse but because it's my child...my baby... punching, clawing, slapping, cussing, elbowing me and twisting my wrists, it cuts me so deep. I can feel my soul ache.

She and I are about the same height and weight making it feel like I put in a couple rounds in a boxing ring sometimes, but the pain in my heart far outweighs any physical pain.

I'm at a total loss and about out of tears.

Tuesday, November 8, 2011

IEP and 504 Plan Resource

I found this pdf document and have listed it on my "Resources" page.
It is written by the National Association of School Psychologists and it gives good, detailed information about Early Onset Bipolar Disorder and also on page 3 and 4 it lists school based treatments (or provisions) to be made for the Bipolar student.

All wonderful ideas to list on your child's IEP or 504 Plan.

Monday, November 7, 2011

Promising New Research Study



JBRF Announces FDA Approval to Proceed with Clinical Trial

FOR IMMEDIATE RELEASE

Maplewood, NJ - November 3, 2011

The Juvenile Bipolar Research Foundation (“JBRF”) announced today that the Federal Drug Administration (“FDA”) has approved its submission of a request to study the use of intranasal ketamine in the treatment of children ages 6-12 with bipolar disorder who also have an identifiable biological marker associated with body temperature dysregulation. “This research, funded by donations from supporters of JBRF, will be the first placebo-controlled study to apply this novel treatment in this age group “ said Inger Sjogren, Executive Director of the JBRF.

Dr. Demitri Papolos, Director of Research of the JBRF, noted that a controlled study of ketamine using, for the first time, an intranasal form of administration will build upon previous work performed in both children and adults. A pilot study that he and his colleagues have conducted with over 30 children who struggle with bipolar disorder and are resistant to traditional treatments has already shown great promise using this approach. In many cases, full resolution of symptoms in the most severe form of the disorder has been observed. This work is consistent with findings from studies in adults with treatment resistant depression who received a single dose of ketamine given intravenously.

Ketamine may prove to have the most positive impact on a unique set of behavioral, cognitive and physiological characteristics associated with a group of children who are the most resistant to traditional treatments and suffer repeated hospitalizations. Dr. Papolos and his colleagues first reported on the specific behavioral attributes in this group, termed Fear of Harm, in the Journal of Affective Disorders in 2009. Since that time, a specific biological marker has been attributed to this severe subtype of the illness in children. This marker, associated with a dysregulation of body temperature will be further studied with the use of a novel monitor designed to collect a wide range of physiological signals related to temperature and sleep.

Ms. Sjogren said that the study was expected to begin within the next 3 months and last approximately 12 months. Further information is available at http://www.jbrf.org/.

The JBRF is a 501(c)(3) corporation founded to support research into the study and treatment of bipolar disorder in children and adolescents.

For information regarding the JBRF and its mission please contact Executive Director Inger Sjogren at ingersjogren@jbrf.org.

Sunday, November 6, 2011

The "S" Word!!


I've decided in order to make things less confusing, I am giving my daughters fictitious names instead of just saying "my oldest daughter" or oftentimes just "my daughter" because I do have two daughters but mostly just talk about the youngest, who is the one suffering with mental illnesses.
  • 15 year old: Britney
    • Bipolar 1 ultra-rapid cycling and at times ultradian cycling, mixed episodes
    • PTSD
    • OCD
    • ODD
    • Panic Disorder
    • Social Anxiety
  • 19 year old: Haley
    • does not live at home
    • attends college
Friday I took Britney to have a mental evaluation for the Disability Determination Board, in our efforts to get Social Security Disability for her. This is our second go-round filing a disability claim. The first time she was denied - apparently this is the norm for the first application, as there is someone whose sole job is to stamp "DENIED" on all incoming claims without even reading them, hoping they won't appeal or file a new one. Well, he won last time because with all I had going on I missed the deadline for the appeal and didn't give it another thought until her illness was out of hand and required numerous hospitalizations in a short period of time. So I started the process again a couple months back. This is the first time we've been sent for a mental evaluation and this time there are so many new in patient and outpatient hospitalizations in her file - hopefully her claim will go through this time. Wish us luck! I know many of you know what a long process this can be.


After the mental evaluation Britney had an appointment with the Pdoc. We had good things to report for the first time in a long time! The Ativan on a regular schedule (1/2 mg three time a day) added to her current cocktail of mood stabilizer and anti psychotic seems to be working well and she is...(whisper voice)...stabilized. I was scared to say that word and have knocked on every piece of wood I have encountered since saying it. After many years of instability, a few knuckle splinters is small potatoes!

So although her behavior isn't perfect - I'm not looking for perfect. I'm content that I don't have to walk on eggshells, I haven't had to deal with any rages lately and I actually get smiles, laughter and joking around from Britney! That is my perfection! I am so happy and she is happy. This is just heaven!

Now that things are so calm and serene around here I hate to dredge up the bad rages and live them all over again but  I promised I'd tell you about it so I'm going to enjoy the calm for a couple of days and will post about it soon.


Wishing you balance.
~Melissa